We arrived at the NIH last night at about 8:00 pm. Our cab driver " Hector" met us at the airport and talked to us about growing up in Columbia during our 20 minute ride to the NIH Children's Inn. The NIH is a huge government campus. We had to go through a security checkpoint which included meeting some armed officials who made us all get out of the cab, show our ID and walk through a metal detector. Meanwhile they were checking the cab's trunk, hood, glove box, etc. I guess they don't mess around. :)
We got checked in at the Inn. They had a gift waiting for Caleb and then they gave us a mailbox key. Everyday, they put a little surprise in the mailbox for Caleb. So far he's gotten stuffed animals and coloring books.
We woke up at & 7:30 am and headed over the clinical center to register. We then were admitted into an inpatient room. We ordered Caleb breakfast, which he didn't eat ( such a picky eater lately!) then we met with the Nurse practitioner who is responsible for planning his schedule with the specialists while we are here. He was seen for a few minutes by a geneticist who ordered an abdominal ultrasound for Caleb. I guess they want to make sure his he has all of his organs and are in the right place such as kidneys. We saw an Endocrinologist Fellow this afternoon and we pretty much went through Caleb's history again. The attending Endo. was busy so I guess will see Caleb later in the week. Scott and I went to the lab to have our blood drawn and eventually Noah will have his blood drawn too and sent to the NIH. I guess they're looking for something different to show up in Caleb's labs in comparison to ours.
We're back at the Inn now. We have a beautiful spacious room with a private bath, tv, and internet access. There's also a huge indoor play area for the kids. They're serving dinner at 6:00 pm and then Scott is taking the shuttle to the grocery store this evening.
I will post more pictures soon!!
We got checked in at the Inn. They had a gift waiting for Caleb and then they gave us a mailbox key. Everyday, they put a little surprise in the mailbox for Caleb. So far he's gotten stuffed animals and coloring books.
We woke up at & 7:30 am and headed over the clinical center to register. We then were admitted into an inpatient room. We ordered Caleb breakfast, which he didn't eat ( such a picky eater lately!) then we met with the Nurse practitioner who is responsible for planning his schedule with the specialists while we are here. He was seen for a few minutes by a geneticist who ordered an abdominal ultrasound for Caleb. I guess they want to make sure his he has all of his organs and are in the right place such as kidneys. We saw an Endocrinologist Fellow this afternoon and we pretty much went through Caleb's history again. The attending Endo. was busy so I guess will see Caleb later in the week. Scott and I went to the lab to have our blood drawn and eventually Noah will have his blood drawn too and sent to the NIH. I guess they're looking for something different to show up in Caleb's labs in comparison to ours.
We're back at the Inn now. We have a beautiful spacious room with a private bath, tv, and internet access. There's also a huge indoor play area for the kids. They're serving dinner at 6:00 pm and then Scott is taking the shuttle to the grocery store this evening.
I will post more pictures soon!!
Glad you arrived safely and are getting into the routine. Praying that all goes well and you will get some answers!!
ReplyDeleteGlad to hear they are treating you well and that Caleb gets special gifts...that is so cool!
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