Wednesday, January 27, 2010

NIH visit day 3


Today was another full and busy day! We started at 7:30 am with a blood sugar check, then breakfast for Caleb. By 8:30 we were meeting with a speech, language pathologist where Caleb was evaluated. Thankfully, Caleb is already seeing such a great SLP at home that she didn't have a lot to add. We then had an a appt. with a Physiatrist who tested Caleb on his gross motor skills and he actually is doing quite well in that area. He is delayed but we were told that he just needs organized play like tumbling, swimming, etc. to catch up. The doctor also had another suggestion for a different type of orthotic than Caleb is wearing right now.

We had lunch and then Caleb saw a dentist/geneticist. Can you imagine?? These people must have spent half their lives in school! He looked at Caleb's teeth and said that often teeth can give a lot of clues. They did x-rays and thankfully Caleb has all of his permanent teeth up in his gums. The dentist was pretty impressed with Caleb's bifurcated tooth. He said it was a classic dentil anomoly that was pretty rare to see. He was going to research it but he said that it may be unrelated to Caleb's other issues

We then met with a dietician who gave us some tips on broadening Caleb's diet. He's pretty limited in what he'll eat right now. Of course if he has some kind of bacteria in his gut then that would be responsible for a lot of his pickiness. He sees GI tomorrow so we'll see what they say.

We finished off the day with the Enocrinologist/ Geneticist.....again the guy said he did 9 years of school AFTER medical school! The endo/geneticist along with the another geneticist seem to think that caleb may have a particular syndrome in a mild form. It's pretty interesting but I'll share that more when we have more details.


Two more days to go!! Here's some pictures!!

The Children's Inn right across the street from the clinical center



Caleb yesterday after his eyes were dilated.

Scott & Caleb



Scott working on his sermon between physician visits

Caleb playing his gameboy during some downtime.


















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